First, my family and I would like to thank you all for your prayers and well wishes for Noah's recovery. God has given our family another challenge for us to face. With His love and your prayers Noah will receive the new heart he requires.
Dearest friends and family,
We wish that we could have been there with you all tonight in person, but our priority is here in Texas! These past two months have been the hardest and most trying times in our lives but through our support and our faith in God, we have made it through each day. The facility where Noah is receiving his medical care is second to none. His entire medical team (yes, he has an entire team) is as determined as we are to see our little Rocky walk out of this hospital and live the long and prosperous life he deserves. Being away from our family, friends and supporters like all of you makes this already tough situation that much harder, however it will all be worth while when we can return home with our happy and healthy little boy and his new heart!
So, I write to you all today to say thank you. Thank you for the support, thank you for the prayers and most of all thank you for believing in our little boy.
God gives his toughest battles to his strongest solders and all of us together are one amazing army!
From Houston with love,
Casey, Brad and Noah
Please contuine to support baby Noah as he still waits for a new heart.
May God Bless baby Noah's family and doctor as well everyone that supports this great cause.
My name is Noah Townsend and I am 2 years old. My father Brad and my mother Casey were married in December of 2008 and I came along in November 15, 2010. I would like to share with you the rest of the story.
I was diagnosed with an exceptionally rare heart condition called Restrictive Cardiomyopathy. This diagnosis came Friday, March 1,after a couple of different trips to the hospital and with lots of testing taking place. The words that came after the diagnosis rocked my family to its core. We were told that I would have to undergo a heart transplant to have a chance at survival.
The doctors at Ochsner were confident that I was a perfect transplant candidate. Mom and Dad immediately started the ball rolling to get the operation approved and get me listed for a new heart I so desperately need. As you can imagine, my parents and the rest of our family sat in disbelief when all this occurred, because I was a seemingly healthy, thriving young boy who should not be in need of new heart.
As my parents prepared to work towards getting me listed for a new heart, more disheartening news came. Mom and Dad were told they had to move me to Texas Children's Hospital in Houston; a hospital that has a higher volume of transplants was required in order for insurance coverage to apply and for me to have a successful transplant. The facility where I am being treated is top notch and completed 13 pediatric heart transplants last year.
That news was delivered on Thursday, March 7 and on Friday, March 8, Dad and I were airlifted to Houston, while mom and my grandmother drove the 5 hours to meet us. My grandfather, Albert Cyrus, also came to spend time with my family. He is here to help my parents with this task of taking care of me and giving them support during a very difficult time.
Upon my arrival, I was again poked and prodded by several new nurses and doctors. I had been such a good sport in the past, but I have had enough and started to resist taking medicine or talking in the presence of ANY medical professional. I have had four surgeries in the past few weeks and have two Berlin hearts installed that have taken over my cardiac functions. This is good for my heart but it will require me to stay in the hospital until a new heart is found for me. The length of time for that to occur is unknown.
My aunt Regina will continue to post my progress on a site called Caring Bridge. Please go to this site, www.caringbridge.org put in my name, Noah Townsend to follow my progress daily.
Please continue to keep my parents, Casey and Brad and especially me, Noah in your prayers. We thank you all for the love and support for our family; our faith continues to be tested but we know that the Lord and our special angel are holding me in the palm of their hands.
A fundraiser is being planned for my parents to help them with the expenditures that are not covered by insurance. The information for this event will be posted on this web site once all the details are complete. Please check back for additional information.
Thank you all again for your prayers and for asking God to help us through this difficult experience as I await a new heart.